让性和性别少数群体参与健康研究:建立和维持PRIDEnet
概括
建立PRIDEnet,一个国家网络,增强了对性和性别少数群体 (LGBTQIA+) 社区的健康研究参与. 这种基础设施促进了信任和广泛参与,这对于减少健康差距至关重要.
科学领域:
- 生物医学研究的研究.
- 社区参与的研究 (CEnR)
- 健康差异研究 研究健康差异研究
背景情况:
- 性和/或性别少数群体 (LGBTQIA+) 社区在研究中面临代表性不足和健康差异.
- 过去的虐待,歧视和医疗保健环境中的耻辱妨碍了LGBTQIA+参与.
- 有效的参与策略对于包容性健康研究和政策制定至关重要.
研究的目的:
- 描述PRIDEnet的发展,这是一个国家网络,促进LGBTQIA+参与健康研究.
- 为LGBTQIA+个人建立一个社区参与的研究 (CEnR) 基础设施.
- 在生物医学研究中为服务不足的社区确定有效的参与方法.
主要方法:
- 根据社区参与研究 (CEnR) 的原则开发了PRIDEnet.
- 实施了关系建设和数字沟通策略.
- 创建了一个CENR基础设施,以支持多个研究项目,包括PRIDE研究和NIH的我们所有人研究计划.
主要成果:
- 在全国范围内,PRIDEnet成功地吸引了成千上万的LGBTQIA+认定个体.
- 该网络提供低门参与机会,使个人能够加入研究并塑造研究.
- 为持续的社区参与建立了可持续的CenR基础设施.
结论:
- 适应性基础设施和持续的关系是长期参与的关键.
- 高接触 (建立信任) 和广泛 (收集数据) 活动的组合是有效的.
- 具有实践经验和实质性社区贡献的多元化团队对于公平的研究至关重要.
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