父母对自闭症预测测试的态度 在生命的第一年
Aurora M Washington1, Amanda H Mercer2, Catherine A Burrows3
1University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.
Journal of neurodevelopmental disorders
|August 17, 2024
概括
家长们对使用生物标志物的早期自闭症预测感兴趣,以获得更早的干预. 测试的动机,如早期准备和干预,是关键的,但可能受到资源和服务可用性的限制.
科学领域:
- 神经发育障碍 神经发育障碍
- 生物标记技术的生物标记技术
- 儿科医疗保健服务 儿科医疗保健服务
背景情况:
- 像MRI和EEG这样的新兴技术可以在婴儿时期识别自闭症.
- 调查父母对早期自闭症预测的看法至关重要.
研究的目的:
- 探索家长对婴儿基于生物标志物自闭症预测的实用性和影响的看法.
- 了解有关早期自闭症诊断的动机和担忧.
主要方法:
- 对婴儿的父母进行了定性采访 (n=55).
- 参与者包括有 (n=30) 和没有 (n=25) 患有自闭症儿童的父母.
- 感应定性编码分析了父响应.
主要成果:
- 大多数家长对预测性自闭症测试表示兴趣,特别是如果他们担心发展.
- 早期干预是预测测试的主要预期好处.
- 父母讨论了预期的情绪,行为和有关预测准确性和未来需求的担忧.
结论:
- 父母希望早期自闭症预测能够及时进行干预和准备.
- 家庭资源和服务的可用性可能会影响早期干预的可行性.
- 伦理沟通,公平服务和未来的研究是关键考虑因素.
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