多发性硬化和身份:混合方法系统审查
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Updated: Jun 16, 2025

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Federica Graziano1,2, Emanuela Calandri1, Martina Borghi2,3
1Department of Psychology, University of Torino, Turin, Italy.
Disability and rehabilitation
|August 19, 2024
概括
多发性硬化症 (MS) 显著影响患者的自我意识,导致身份不连续. 重新定义一个人的身份对于更好地适应与MS生活至关重要.
科学领域:
- 心理学 心理学 心理学
- 神经科学是一个神经科学.
- 康复科学 康复科学 康复科学
背景情况:
- 多发性硬化症 (MS) 对患者的自我意识和身份提出了独特的挑战.
- 了解MS对自我概念的心理测量和影响,对于患者的护理至关重要.
- 适应慢性疾病往往与个人身份交织在一起.
研究的目的:
- 在多发性硬化症 (MS) 患者中系统地审查评估身份和自我的心理测量措施.
- 检查MS对患者身份和自我概念的影响.
- 探索身份/自我和适应国家之间的关系.
主要方法:
- 在五个数据库中对同行评审的经验研究进行系统审查,直至2024年4月.
- 纳入标准:涉及多发性硬化患者使用定量,定性或混合方法检查身份/自我的研究.
- 使用混合方法评估工具 (MMAT) 进行质量评估;叙述和主题综合,然后进行整合.
主要成果:
- 综合了43项研究,揭示了MS研究中"自我"和"身份"的不同用途.
- 多发性硬化症 (MS) 与自我 (身体,工作,家庭,社会) 和身份不连续性的各种方面的损失有关.
- 积极的自我观念和将MS融入一个人的身份与更好地适应这种情况有关.
结论:
- 重新定义身份是促进多发性硬化症 (MS) 患者调整的核心因素.
- 临床医生应优先考虑在MS患者护理中围绕身份变化的讨论和支持.
- 进一步的研究可以探索具体的干预措施,以促进身份融合和加强调整.
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