评估 iSibWorks:为残疾儿童的兄弟姐妹提供虚拟认知行为干预
Kylie D Mallory1, Hiba Al-Hakeem1, Shazeen Alam2
1Bloorview Research Institute, Holland Bloorview Kids Rehabilitation Hospital, 150 Kilgour Road, Toronto, ON M4G 1R8, Canada.
PEC innovation
|August 19, 2024
概括
iSibWorks虚拟干预并没有显著改变残疾儿童兄弟姐妹的生活质量或社会支持. 然而,参与者发现该计划具有吸引力,对日常生活应用有益.
科学领域:
- 儿科心理学 儿科心理学
- 家庭研究 家庭研究
- 数字健康干预措施 数字健康干预措施
背景情况:
- 残疾儿童的兄弟姐妹经常面临着独特的心理社会挑战.
- 针对这一群体量身定制的虚拟干预措施的可用性有限.
- 该iSibWorks计划是为了解决这种支持和可访问性的差距而开发的.
研究的目的:
- 评估iSibWorks基于团体的虚拟干预对兄弟姐妹生活质量 (QoL) 和社会支持的影响.
- 收集兄弟姐妹关于他们与iSibWorks计划的经验的定性反.
主要方法:
- 有38个残疾儿童的兄弟姐妹参与了iSibWorks干预.
- 通过儿童生活质量 (PedsQLTM) 和儿童社会支持量表 (SSSC) 的干预前后调查问卷收集的定量数据.
- 从开放式反表格使用传统内容分析分析的定性数据.
主要成果:
- 在参与后的PedsQLTM或SSSC得分中没有观察到统计学意义上的差异.
- 兄弟姐妹报告说,他们积极参与团体学习和活动.
- 参与者发现与其他兄弟姐妹联系并将节目内容应用于他们的生活有价值.
结论:
- 包括COVID-19流行病相关压力因素在内的因素可能影响了定量结果.
- 尽管QoL或社会支持得分没有显著变化,但兄弟姐妹们认为iSibWorks是愉快的,有意义的和有吸引力的.
- 该干预措施在为残疾儿童的兄弟姐妹提供积极和可访问的体验方面显示出希望.
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