从有复杂护理需求的孩子的父母的角度来看,概念化倦怠
Nathalie J S Patty1,2, Karen M van Meeteren1,3, Minke Verdonk3
1Faculty of Behavioural and Movement Sciences, Section Clinical and Family Studies, Vrije Universiteit Amsterdam, Van der Boechorststraat 7, 1081 BT Amsterdam, the Netherlands.
PEC innovation
|August 20, 2024
概括
患有复杂护理需求的儿童的父母将燃烧经历为导致疲劳和生存模式的长期压力循环. 这种隐藏的斗争需要支持网络的意识.
科学领域:
- 育儿与儿童健康 育儿与儿童健康
- 心理学 心理学 心理学
- 护理人员福利 护理人员福利
背景情况:
- 父母的倦怠是对有复杂需求的儿童的照顾者的一个重要问题.
- 了解父母的观点对于有效的支持策略至关重要.
研究的目的:
- 在照顾有复杂护理需求的儿童的背景下,调查父母对倦怠的概念化.
- 探讨家长关于倦怠的实践经验.
主要方法:
- 与38名家长进行了半结构面试.
- 最大变异采样确保了不同的父母,儿童和家庭特征.
- 使用感应主题分析来解释数据.
主要成果:
- 燃烧症的特点是经常性的,长期的性质,从压力发展到疲.
- 父母进入了"生存模式",包括"战斗"以表现良好,并通过情感/身体距离"逃跑".
- 倦怠可以"隐藏",需要非正式和正式网络的警.
结论:
- 家长的倦怠与照顾有复杂需求的孩子的不屈不的责任密切相关.
- 倦怠的隐藏性质强调了需要提高意识和支持的必要性.
- 认识到父母对倦怠的不同解释,可以改善沟通和干预.
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