喘严重程度:患者的观点
Gabriella Guarnieri1, Bianca Olivieri2, Manuela Latorre3
1Department of Cardiac, Thoracic, Vascular Sciences and Public Health, University of Padova, Padova, Italy.
European clinical respiratory journal
|August 20, 2024
概括
喘患者对严重程度的看法往往不同于临床定义,影响治疗. 改善患者教育和诊断实践对于改善意大利的喘管理至关重要.
科学领域:
- 肺部病理学 肺部病理学
- 公共卫生 公共卫生
- 患者报告的结果
背景情况:
- 喘管理需要了解患者对疾病严重程度的看法.
- 患者报告和临床定义的喘严重程度之间的差异可能会影响治疗策略.
- 意大利严重喘网络 (SANI) 发起了一项研究,以探索意大利人口中的这些认知.
研究的目的:
- 调查意大利喘患者如何感知他们的疾病严重程度 (轻度与严重).
- 为了确定影响不同喘严重程度的量身定制治疗方法的因素.
- 提供有关意大利当前喘护理实践的见解.
主要方法:
- 在2020年11月至2021年1月期间,使用计算机辅助个人采访 (CAPI) 进行了一项调查.
- 从308名意大利成年人中收集了数据,使用25项多选择问卷.
- 调查问卷涵盖了喘诊断,症状,治疗,并发症和生活质量.
主要成果:
- 83.8%的参与者报告轻度喘,16.2%报告严重喘.
- 严重喘患者表现出更长的疾病持续时间,更多的症状,频繁的恶化和更高的医疗保健利用率.
- 尽管符合一般指导方针,但22%的自我认定轻度喘患者有严重症状;22%的轻度病例和50%的严重病例使用口服皮质类固醇 (OCS). 对轻度喘的坚持率为28%,对严重喘的坚持率为76%.
结论:
- 在临床和患者感知到的喘严重程度之间存在很大的差距.
- 自我报告的严重喘的患病率似乎比文献表明的要高.
- 优化喘护理需要加强患者教育,改善诊断和更好地遵守治疗,特别是解决轻度喘中OCS的使用问题.
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