"因为我的混音噪音,我被嘲笑":帕金森病和耻辱感
Beth Mastel-Smith1, Melinda Hermanns2, Justin Melendez3
1School of Nursing, The University of Texas at Tyler, Tyler, TX, USA bmastelsmith@uttyler.edu bethms@swbell.net.
Research and theory for nursing practice
|August 21, 2024
概括
患有帕金森病 (PD) 的人经历了多种形式的耻辱,包括公共,自我,协会和结构性. 了解这些耻辱类型及其相互关系对于开发有效的干预措施来减少对患者和护理人员的负面影响至关重要.
科学领域:
- 神经学 神经学
- 精神病学是一个精神病学.
- 社会学 社会学 社会学
背景情况:
- 帕金森病 (PD) 与社会耻辱的重大风险有关.
- 污名论确定了四种关键类型:公共,自我,协会污名和结构性污名.
研究的目的:
- 探索PD患者及其护理人员对耻辱的看法和经验.
- 审查现有的文献和社交媒体,寻找与PD相关的耻辱的证据.
- 在PD的背景下分析不同类型的耻辱之间的相互联系.
主要方法:
- 采用了一种定性,描述性的多病例研究设计.
- 数据收集包括采访七名患有PD的人和五名护理人员.
- 进行了文献审查和社交媒体扫描,以收集耻辱的证据.
主要成果:
- 在文献中确定了所有四种耻辱类型,并由护理人员报告.
- 患有PD的个人描述经历了公众,自我和结构性的耻辱.
- 在公众和自我污名化,公众污名化和协会污名化,以及自我污名化和结构性污名化之间发现了相互关系.
结论:
- 所有已识别的耻辱类型都会对患有PD的个体及其照顾者产生负面影响.
- 解决耻辱需要多层次的干预,重点是提高知识和意识.
- 护士和公众必须接受教育,以减少耻辱和改善全球PD患者的护理.
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