患有血管异常的孩子的父母的双重应对经验
Anna M Kerr1, Jacqueline Wehrli2, Clarice Contente2
1Department of Primary Care, Ohio University Heritage College of Osteopathic Medicine, Dublin, Ohio, USA.
Pediatric blood & cancer
|August 22, 2024
概括
患有血管异常 (VA) 的孩子的父母使用各种应对策略,但他们对压力管理的方法可能会有所不同,影响家庭福祉. 了解这些双层应对动态对于有效的支持至关重要.
科学领域:
- 儿科罕见疾病 儿科罕见疾病
- 心理学 心理学 心理学
- 家庭研究 家庭研究
背景情况:
- 血管异常 (VAs) 是一种罕见的儿科疾病,需要复杂,协调的护理.
- 患有VA的孩子的父母在医疗保健中经历了相当大的压力和不确定性.
- 关于VA儿童的父母如何作为一对夫妇应对压力,人们知之甚少.
研究的目的:
- 探索患有血管异常的儿童的父母所采用的双向应对策略.
- 了解父母压力的复杂性,并在罕见儿科疾病的背景下应对.
主要方法:
- 半结构面试对27名家长 (13个双层,1个个体) 进行.
- 用二度主题分析来分析采访数据.
主要成果:
- 父母面临着医疗,个人,后勤和经济方面的压力.
- 他们确定了八种应对策略:积极,情绪支持,信息支持,认知回避,分心,重构,接受和内化.
- 出现了五种双向应对动态:协作,支持,委托,分离和负面.
结论:
- 对于患有VA的孩子的父母来说,双边应对是复杂而多方面的.
- 尽管有共同的诊断,父母可能不会分享他们喜欢的应对策略.
- 干预措施应应对各种各样的家长压力和不同的应对动态,以获得有效的心理社会支持.
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