PedsQL是否反映了自闭症青少年的实时生活质量? 与经验抽样方法的比较
Hui-Jen Shyu1, Yu-Wei Ryan Chen2, Daphne Yih Ng1
1School of Occupational Therapy, College of Medicine, National Taiwan University, Taiwan.
Disability and health journal
|August 22, 2024
概括
与实时评估相比,PedsQL工具低估了自闭症青少年的生活质量 (QoL). 将回顾和实时方法结合起来,可以更全面地了解自闭症青少年的 QoL.
科学领域:
- 神经发育障碍 神经发育障碍
- 心理评估 心理评估 心理评估
- 青少年健康 青少年健康
背景情况:
- PedsQL是评估自闭症青少年生活质量 (QoL) 的常用工具,但其回顾性质可能无法准确地捕捉他们的实时经历.
- 自闭症患者中记忆回忆方面的挑战引发了人们对回顾性 QoL 测量有效性的担忧.
研究的目的:
- 用PedsQL和经验采样方法 (ESM) 来比较自闭症青少年与神经类型同龄人的整体和社会QOL.
- 调查PedsQL追溯得分与ESM在两组中捕获的实时QoL体验之间的关系.
主要方法:
- 175名青少年 (117名自闭症患者,58名神经类型患者),年龄在10-16岁之间,通过移动设备完成了PedsQL和7天ESM协议 (每天7次评估).
- 统计分析包括多重线性回归和多层次建模,以比较群体之间的QoL,并评估PedsQL和ESM之间的关联.
主要成果:
- 自闭症青少年在PedsQL上报告了较低的整体和社会生活质量,而不是在实时ESM测量上.
- 神经典型的青少年在PedsQL社会功能和实时社会体验之间显示出显著的关联.
- 对于自闭症青少年来说,只有社交参与期间的实时孤独与PedsQL社会功能相关.
结论:
- PedsQL可能不能完全代表ESM测量的自闭症青少年的实时QOL.
- 单独依赖ESM可能会错过那些选择退出或无法完成调查的参与者的数据.
- 建议使用追溯 (PedsQL) 和实时 (ESM) 评估的综合方法来全面评估自闭症青少年的 QoL.
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