收养者使用直接向消费者提供遗传测试的经验和这种使用的决定因素:北克的一项混合研究
Johanna Despax1, Carl Lacharité1, Evelyne Bouteyre2
1Centre d'Etudes Interdisciplinaires sur le Développement de l'Enfant et de la Famille (CEIDEF), Université du Québec à Trois-Rivières, Trois-Rivières, Quebec, Canada.
Journal of genetic counseling
|August 23, 2024
概括
直向消费者基因测试 (DTC-GT) 为收养者提供了一条通往家庭团聚的道路,尽管存在诸如结果解释等挑战. 大多数收养者报告了积极的经验,发现好处超过了潜在的缺点.
科学领域:
- 遗传学 遗传学 是一个
- 心理学 心理学 心理学
- 社会学 社会学 社会学
背景情况:
- 直接面向消费者的基因测试 (DTC-GT) 对被收养的人来说,具有独特的伦理和情感考虑.
- 收养者的身份可能会受到遗传测试经验的重大影响.
研究的目的:
- 用DTC-GT.描述在北克的收养者的经历.
- 了解DTC-GT对收养者的好处和缺点.
主要方法:
- 一种混合方法的方法,结合了问卷和半结构面试.
- 143名DTC-GT用户和40名非用户完成了标准化秤.
- 五名DTC-GT用户参加了深入采访.
主要成果:
- 家庭团聚是领养者使用DTC-GT的主要动机.
- 关键的挑战包括解释结果和断言对遗传数据的自治.
- 收养者优先考虑了DTC-GT的好处,而不是潜在的伦理问题,报告了积极的经验和减少了焦虑.
结论:
- 收养者的DTC-GT经历受到年龄和心理困扰等因素的影响.
- 该研究确定了收养者的需求,风险因素,并推了DTC-GT支持的最佳实践.
- 提供足够的信息和支持对于使用DTC-GT的受养者来说至关重要.
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