释放现实世界数据的力量:可持续医疗保健的框架
Ashkan Pirmani1,2,3, Yves Moreau1, Liesbet M Peeters2,3
1ESAT, STADIUS, KU Leuven, Leuven, Belgium.
Studies in health technology and informatics
|August 23, 2024
概括
在医疗保健中利用现实世界数据 (RWD) 需要解决数据限制和利益相关者的需求. 一个新的框架强调了FAIR原则,参与和混合管道,以获得更好的患者护理见解.
科学领域:
- 医疗保健信息学 医疗保健信息学
- 数据科学在医学中的数据科学
- 临床研究 临床研究
背景情况:
- 现实世界数据 (RWD) 为了解患者的治疗结果和治疗有效性提供了显著的潜力.
- 在RWD利用方面的挑战包括数据限制,多样化的利益相关者参与,以及数据管理基础设施的不足.
研究的目的:
- 提出一个框架,以克服在医疗保健中利用现实世界的数据方面的障碍.
- 加强RWD的有效利用,以提高患者护理和治疗效率.
主要方法:
- 在数据管理方面遵守FAIR原则 (可查找,可访问,可互操作,可重复使用).
- 积极的利益相关者参与和教育倡议.
- 开发包容,务实的联合混合数据管道.
主要成果:
- 拟议框架的实施有助于克服RWD利用方面的挑战.
- 通过FAIR原则提高数据可访问性和互操作性.
- 加强医疗保健各利益相关者之间的合作和理解.
结论:
- 为了有效利用RWD,一个包含FAIR原则,利益相关方参与和混合管道的战略框架至关重要.
- 这种方法使医疗机构能够利用RWD的潜力来推进患者护理和治疗策略.
- 通过强大的数据治理和协作努力来解决RWD固有的局限性,可以实现医疗保健的可持续进展.
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