西部数据中心:一个区域间的健康数据共享生态系统,用于研究
Marc Cuggia1, Leslie Guillon-Grammatico2, Pierre-Antoine Gourraud3
1Univ Rennes, CHU Rennes, INSERM, LTSI-UMR 1099, F-35000, Rennes, France.
Studies in health technology and informatics
|August 23, 2024
概括
西部数据中心 (ODH) 增强了用于研究的健康数据共享,利用临床数据仓库 (CDW) 和临床数据中心 (CDC). 该倡议提供了930万名患者记录的访问权限,支持多样化的研究,同时解决数据质量挑战.
科学领域:
- 医疗信息学 医疗信息学
- 医学研究基础设施 医疗研究基础设施
- 在医疗保健中的数据科学.
背景情况:
- 西部数据中心 (ODH) 是GCS HUGO的倡议,涉及法国大西地区的大学医院.
- 它旨在促进健康数据的共享和重复使用,以实现基于健康数据的研究.
- 临床数据仓库 (CDW) 和临床数据中心 (CDC) 是其结构的核心,能够进行分析并形成一个区域间的学习健康系统.
研究的目的:
- 建立一个协作型,多机构的健康数据共享和再利用模式.
- 通过使用真实世界健康数据来促进创新和研究.
- 展示ODH对单中心和多中心研究的能力.
主要方法:
- 使用一个协作和多机构模式.
- 实施临床数据仓库 (CDW) 和临床数据中心 (CDC).
- 促进获得广泛的健康数据,通过医疗保健专业的整合,确保临床相关性.
主要成果:
- 在2023年,便于访问超过930万病人的健康数据记录.
- 在各种临床领域展示了单心和多心的研究能力.
- 强调数据质量,互操作性,协调性和标准遵守的重要性.
结论:
- 卫生数据办公室代表了健康数据生态系统的可扩展模型,促进研究和创新.
- 对数据质量和互操作性的持续努力对其成功至关重要.
- ODH模型有可能成为国家和超国家数据共享倡议的基础.
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