临床指南的数字化:患者偏好的挑战
Vije Kumar Rajput1,2, Mette Kjer Kaltoft3, Jack Dowie1,3
1London School of Hygiene and Tropical Medicine, London, UK.
Studies in health technology and informatics
|August 23, 2024
概括
数字临床指南可能与个性化患者护理相冲突,因为疾病定义中嵌入了偏好. 消除这些偏好对于将可计算的指南与个性化治疗相协调至关重要.
科学领域:
- 医疗信息学 医疗信息学
- 临床决策支持 临床决策支持
- 个性化医疗是个性化的医疗.
背景情况:
- 临床指南的数字化旨在改善医疗保健的提供.
- 个性化患者护理需要考虑个人偏好.
- 当前的指导方针可能会在疾病定义中嵌入非中性偏好.
研究的目的:
- 评估数字化临床指南与个性化患者护理的兼容性.
- 在临床指南中确定疾病定义中嵌入的偏好.
- 探索这些偏好对以患者为中心的护理的影响.
主要方法:
- 案例研究侧重于骨健康和骨质疏松症的定义.
- 英国临床指南中诊断和干预值的分析.
- 检查专家共识和成本效益对准则制定的影响.
主要成果:
- 骨质疏松症的定义依赖于1992年专家委员会对骨矿物质密度值的偏好.
- 英国的临床指南采用了这种诊断值,并纳入了偏好敏感的干预值.
- 这些嵌入式偏好优先于患者的选择,阻碍了个性化护理.
结论:
- 数字化指南在适应个性化护理方面面临着概念上的挑战.
- 在疾病定义中嵌入的偏好必须解决可计算的指南,以支持个性化患者护理.
- 未来的数字化努力应集中在技术和概念方面,以实现真正的个性化医疗.
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