北欧公民愿意分享数字健康数据
Jeppe Eriksen1, Camilla Bidstrup Hjermitslev1, Jarmo Reponen2
1Department of Sustainability and Planning, Aalborg University, Denmark.
Studies in health technology and informatics
|August 23, 2024
概括
大多数北欧公民都愿意与医疗保健提供者和研究分享他们的数字健康数据. 愿意分享健康数据的意愿随着年龄的增长而下降,但随着教育水平的提高而增加.
科学领域:
- 数字健康数字健康
- 医疗信息学 医疗信息学
- 公共卫生 公共卫生
背景情况:
- 数字医疗保健系统依赖于公民参与和数据共享.
- 了解公民对数字健康数据的态度对于系统质量至关重要.
- 北欧公民对共享数字健康数据的看法仍未得到充分审查.
研究的目的:
- 调查北欧公民愿意分享数字健康数据的意愿.
- 为了探索与医疗保健提供者分享数据的偏好,而不是为了研究.
- 确定影响数据共享意愿的人口因素.
主要方法:
- 横截面研究设计. 截面研究设计.
- 对丹麦,芬兰,冰岛,挪威和瑞典的5078名公民进行调查.
- 使用描述性统计和赔率比率分析.
主要成果:
- 大多数北欧公民表示愿意分享临床相关的健康数据.
- 与医疗保健提供者分享数据的意愿比研究目的更高.
- 随着年龄的增长,分享健康数据的几率下降.
- 高等教育水平与分享健康数据的可能性增加相关.
结论:
- 大多数北欧公民都愿意分享他们的数字健康数据.
- 年龄和教育水平是健康数据共享意愿的重要决定因素.
- 需要有针对性的支持和宣传举措,以帮助那些不太参与数字卫生系统的公民.
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