关于为临床和个人数据流动提供以患者为中心的健康信息框架的建议
Pierangelo Veltri1,2, Wouter Meijer2, Vije Kumar Rajput2,3,4
1DIMES University of Calabria, Rende, Italy.
Studies in health technology and informatics
|August 23, 2024
概括
这项研究引入了以患者为中心的信息框架 (PCIF),使个人能够使用出院信来管理个人健康数据. 该框架促进了安全的跨境数据共享,以改善医疗保健的连续性.
科学领域:
- 医疗信息学 医疗信息学
- 数字健康数字健康
- 患者赋权是患者赋权的一种方式.
背景情况:
- 由于患者健康数据的碎片化,护理的连续性受到挑战.
- 出院信是住院时间的重要总结,但缺乏标准化的患者可访问的管理.
- 跨境医疗需要安全和可移植的患者健康信息.
研究的目的:
- 为个人健康数据管理提出以患者为中心的信息框架 (PCIF).
- 为了使患者能够利用出院通知书进行全面的健康记录跟踪.
- 促进安全,跨境的患者健康信息共享.
主要方法:
- 发展以患者为中心的信息框架 (PCIF) 概念.
- 分析了多个国家的免责书法规.
- 关于在PCIF中为标准化患者出院信的管理协议的建议.
主要成果:
- 一个定义的框架 (PCIF),使患者能够控制他们的健康数据.
- 释放信作为患者主导数据管理工具的演示.
- 探索患者流动性的跨境数据管理解决方案.
结论:
- PCIF为患者控制的健康数据提供了一个可行的解决方案.
- 在PCIF内的标准化放电信可以增强医疗保健连续性和数据保护.
- 拟议的框架支持跨境无健康信息交换.
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