综合临床数据仓库内容以加强外部合作:初步建议
Franck Mouney1, Morgane Pierre-Jean1, Denis Delamarre1
1Univ Rennes, CHU Rennes, INSERM, LTSI-UMR 1099, Rennes, France.
本研究提出了一个新的临床数据目录,以改善研究人员和公司对临床数据仓库 (CDW) 的访问. 该目录澄清了数据的可用性,数量和来源,帮助生物医学项目.
科学领域:
- 生物医学信息学 生物医学信息学
- 数据管理数据管理
- 健康 数据科学 数据科学
背景情况:
- 临床数据仓库 (CDW) 是研究和开发的宝贵资源.
- 外部用户在访问和理解CDW内容时面临挑战.
- 数据透明度有限,阻碍了生物医学项目的启动和完成.
研究的目的:
- 提出一个新的临床数据目录,以提高CDW对外部用户的可访问性.
- 通过澄清CDW内容,促进生物医学项目的启动和完成.
- 解决关键用户问题:数据可用性,数量和生成方法.
主要方法:
- 开发一个临床数据目录的概念框架.
- 该目录的设计是为了回答有关CDW数据的特定用户查询.
- 使用Rennes大学医院的CDW数据实现和可视化一个原型目录.
主要成果:
- 一个原型临床数据目录成功开发和演示.
- 该目录有效地阐明了CDW内容,解决了用户的询问.
- 视觉化展示了目录的实际应用与现实世界的数据.
结论:
- 拟议的临床数据目录显著提高了CDW的可访问性和可用性.
- 这种方法支持外部研究人员和公司利用临床数据.
- 该目录是加速生物医学创新和数据驱动解决方案的关键工具.
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