数据管理和分析的公共可用性 在开放式密集护理数据库上进行的研究的脚本
Coline Andries1,2, Paul Quindroit3, Benjamin Popoff4,5
1Univ. Lille, UFR3S - Ingénierie et Management de la Santé, 59000 Lille, France.
Studies in health technology and informatics
|August 23, 2024
概括
大多数使用重症监护室 (ICU) 开放访问数据库的研究都未能共享数据管理或分析脚本. 这种缺乏共享资源,阻碍了研究可重复性和重症监护医学的合作.
科学领域:
- 关键护理医学 关键护理医学
- 医疗信息学 医疗信息学
- 数据科学数据科学数据科学
背景情况:
- 重症监护病房 (ICU) 管理需要持续监测的高风险患者.
- 开放式的电子健康记录 (EHR) 数据库有助于ICU中的二次研究.
- 可复制性是科学进步的基石.
研究的目的:
- 评估ICU开放访问数据库的出版物中数据管理和分析脚本的可用性.
- 评估研究复制所需的基本材料的可访问性.
主要方法:
- 基于四个主要ICU开放访问数据库的910篇原始文章的系统审查.
- 在已发表的文章中分析脚本的可用性.
- 直接通过电子邮件联系相应的作者以请求材料.
主要成果:
- 超过92%的研究缺乏数据管理脚本,超过93%缺乏分析脚本.
- 在两个月内向753位作者发送的电子邮件请求导致89%的不响应率.
- 只有18%的被联系的作者回复了,大多数电子邮件无法交付或没有得到回复.
结论:
- 在使用ICU开放访问数据的出版物中,研究复制的关键组件在很大程度上缺席.
- 缺乏共享的脚本阻碍了重症监护研究的验证和进步.
- 目前的做法还没有达到期刊关于数据和材料共享的建议.
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