通过翻译患者摘要,赋予公民权力,在数字健康生态系统中获取和共享
Theodoros Solomou1, Ionut-Cristian Canciu1, Marios Christodoulou1
1Department of Computer Science, University of Cyprus, Cyprus.
Studies in health technology and informatics
|August 23, 2024
概括
这项研究提出了一个移动健康框架,以改善患者数据访问和共享. 该创新服务使公民能够更好地控制他们的个人健康信息,解决数据碎片化和语言障碍.
科学领域:
- 数字健康数字健康
- 医疗信息学 医疗信息学
- 移动健康应用 移动健康应用
背景情况:
- 分碎的医疗保健系统造成了访问和共享患者数据的障碍.
- 患者记录中的语言差异使跨境医疗保健和数据解释复杂化.
- 赋予个人对个人健康信息的控制权对于有效的医疗保健管理至关重要.
研究的目的:
- 引入一个移动框架,增强公民对个人健康数据的访问和共享.
- 为了应对医疗保健数据碎片化和语言障碍的挑战.
- 评估新型健康数据服务的可用性和需求.
主要方法:
- 使用欧盟电子卫生数字服务基础设施 (eHDSI) 开发移动框架 OpenNCP.
- 实施FHIR智能健康链接协议,以安全共享健康数据.
- 与40名参与者进行试点研究,以评估框架的可用性和有效性.
主要成果:
- 移动框架成功地促进了健康数据的访问和共享.
- 试点研究表明了框架的可用性和有效性.
- 参与者表现出对可访问和可控制的个人健康服务的强烈需求.
结论:
- 开发的移动框架有效地加强了公民对个人健康数据的控制.
- 集成eHDSI OpenNCP和FHIR智能健康链接协议解决了关键的医疗保健数据挑战.
- 公民对管理个人健康信息的创新数字健康解决方案有很大的兴趣.
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