在儿童中治疗菌菌病的方法:基于共识的建议
Alex Zvulunov1, Holly Neale2, Jonah Stern3
1Sheba Medical Center, Tel-Hashomer and Reichman University, Herzlia, Israel; Pediatric Dermatology Research Alliance, Portland, Oregon.
Journal of the American Academy of Dermatology
|August 24, 2024
概括
儿科真菌菌菌病 (MF) 管理现在有了新的共识建议. 这些指导方针包括早期和晚期儿科MF病例的临床严重程度,生活质量和心理因素.
科学领域:
- 皮肤病学 皮肤病学
- 儿科瘤学 儿科瘤学
背景情况:
- 目前的儿科菌根性菌病 (MF) 管理依赖于成人指导方针,忽视了儿童的不同临床表现.
- 制定具体建议对于有效的儿科MF护理至关重要.
研究的目的:
- 建立针对儿科Mycosis fungoides (MF) 的基于共识的管理建议.
主要方法:
- 一个由83名儿科皮肤病学,皮肤病学,皮肤病理学和儿科血液病瘤学专家组成的国际小组参加了会议.
- 经过三轮的电子德尔菲程序,随后进行了修改后的名义组技术会议,这些建议得到了改进.
主要成果:
- 为了管理早期和晚期儿科MF,制定了共识性建议.
- 严重性评估现在包括,功能/美学影响,生活质量和心理困扰,以及父母的焦虑,超过了传统的分期.
- 对于超出MF第一阶段的治疗选择,专家们之间存在一些分歧.
结论:
- 一项跨国努力成功产生了共识建议,以标准化儿科MF管理.
- 对于结构化,前性方案需要进一步的研究,特别是对于先进阶段的儿科MF.
- 系统,前性数据收集对于推进儿科MF治疗至关重要.
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