父母在学习健康网络中的关键作用
Kerry Ferraro1, Jenny Leal2, Anna Sutton3
1JIA Parent and Pediatric Rheumatology Care and Outcomes Improvement Network Volunteer, Lower Gwynedd, PA, United States.
Frontiers in pediatrics
|August 26, 2024
概括
家长是学习健康网络内的儿科质量改进计划的重要合作伙伴. 他们的参与提高了慢性疾病儿童的护理质量和患者结果.
科学领域:
- 儿科风湿病学 儿科风湿病学
- 医疗保健服务研究 医疗服务研究
- 患者参与 患者参与
背景情况:
- 家长成员是儿科风湿病关怀和改善结果网络的组成部分.
- 父母参与质量改进 (QI) 项目,委员会和治理.
研究的目的:
- 讨论将家长纳入儿科学习健康网络中的合作伙伴的关键作用.
- 突出家长伙伴关系对患有慢性疾病的儿童的护理质量和结果的影响.
主要方法:
- 母公司成员参与QI项目和治理.
- 由家长工作组 (PWG) 开发QI措施和倡议.
- 为家庭和患者创建自我管理支持工具包.
主要成果:
- 家长们积极参与QI测量开发和临床倡议,如治疗到目标.
- 父母工作组 (PWG) 开发了必要的自我管理资源.
- 父母伙伴关系对于网络的运作和成功至关重要.
结论:
- 将父母作为合作伙伴融入,对于改善患有慢性疾病的儿童的护理质量至关重要.
- 家长的参与显著提高了儿科医疗保健网络中的健康结果.
- 该模型展示了患者和家庭参与改善医疗保健的价值.
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