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扰乱和即兴:慢性疾病患者的孤独经历
Melissa Mei Yin Cheung1, Sophie Lewis1, Revati Raja1
1School of Health Sciences, Faculty of Medicine and Health, The University of Sydney, Camperdown, NSW, Australia.
Qualitative health research
|August 26, 2024
概括
患有慢性疾病的人经常因为生活中断而感到孤独. 管理这种情况需要承认它是一个集体的问题,而不仅仅是个人的问题,以获得更好的支持和联系.
科学领域:
- 社会学 社会学 社会学
- 心理学 心理学 心理学
- 健康研究 研究健康研究
背景情况:
- 慢性疾病显著影响生活领域,如身份和社会联系.
- 孤独是慢性疾病的一个普遍但未被充分研究的后果.
- 现有的研究缺乏关于慢性疾病中孤独的体验的深度.
研究的目的:
- 探索患有慢性疾病的个人的孤独经历.
- 了解过去和现在的疾病经历如何塑造孤独感.
- 为了确定个人用来管理孤独的策略.
主要方法:
- 使用散步和照片诱导采访进行定性研究.
- 从14名患有慢性疾病的参与者收集的数据.
- 通过对传记破坏和边缘性的概念进行分析.
主要成果:
- 核心主题是参与者的临界状态,因为慢性疾病而与"新常态"作斗争.
- 应对疾病和孤独障碍的策略被采用,但并不完全有效.
- 慢性疾病中的孤独是个人和集体问题.
结论:
- 慢性疾病和孤独需要从个人转向集体问题框架.
- 需要涉及个人,社区和社会的多层次干预.
- 在慢性疾病中解决孤独需要承认其复杂,交织在一起的性质.
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