从许多声音,一个问题:社区共同设计基于人口的定性癌症研究研究
Susannah K Ayre1,2, Elizabeth A Johnston1,2,3, Xanthia E Bourdaniotis1
1Cancer Council Queensland, Brisbane, Queensland, Australia.
PloS one
|August 26, 2024
概括
与社区成员共同设计癌症幸存者研究材料,提高了它们的相关性和可接受性. 这确保了敏感和有效的数据收集,以了解患者的需求和经验.
科学领域:
- 公共卫生 公共卫生
- 定性研究是指质量研究.
- 癌症的生存率 癌症的生存率
背景情况:
- 基于人口的调查对于了解癌症患者需求至关重要.
- 有效的招聘和数据收集对于癌症幸存者研究至关重要.
- 与社区成员共同设计可以提高研究材料的可接受性.
研究的目的:
- 共同设计和测试用于癌症幸存者研究的单个定性调查问题.
- 开发和完善学习邀请材料,以提高参与度.
- 了解昆士兰州癌症患者的需求和经历.
主要方法:
- 与52名社区成员 (幸存者,护理人员) 进行了15次共同设计研讨会和20次预测采访.
- 参与者生成和改进了调查问题,并审查了邀请材料.
- 对反的内容分析确定了设计研究材料的原则.
主要成果:
- 定性调查问题的关键原则包括定义范围,验证答案和使用简单的语言.
- 邀请材料的原则强调同情心,互惠互利,以及人为因素.
- 共同设计的材料被认为对基于人口的调查具有相关性和可接受性.
结论:
- 社区的协商和共同设计产生了有效的癌症生存研究材料的原则.
- 这些原则可以指导研究人员创建敏感和首选的研究材料.
- 开发的材料提高了对癌症生存研究的接受度和参与度.
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