政策简报 比利时EBCP镜像集团患者和公民参与
Wannes Van Hoof1, Gabrielle Schittecatte2,
1Cancer Centre, Sciensano, Brussels, Belgium. Wannes.VanHoof@sciensano.be.
Archives of public health = Archives belges de sante publique
|August 26, 2024
概括
确保患者在癌症护理方面的权利,需要通过持续对话来了解他们的需求. 持续支持患者组织对于有效的代表性和解决健康不平等至关重要.
科学领域:
- 在瘤学瘤学.
- 公共卫生 公共卫生
- 卫生政策 卫生政策
背景情况:
- 患者和公民的权利,偏好,需求和期望在医疗保健中至关重要.
- 有效的癌症预防,诊断,治疗和护理需要患者,公民和决策者之间进行正式的,持续的对话.
- 目前对捐赠和基于项目的资金的依赖,阻碍了患者在政策中的可持续参与和代表.
研究的目的:
- 强调患者,公民和政策制定者之间需要进行结构化的对话.
- 倡导为患者组织提供长期的结构性支持.
- 强调在癌症护理中识别和监测健康不平等的重要性.
主要方法:
- 对当前癌症政策中的患者参与策略进行系统审查.
- 对患者组织的资金模式的分析.
- 为识别和监测与癌症相关的健康不平等发展框架.
主要成果:
- 持续的,正式的对话对于尊重患者的权利和需求至关重要.
- 可持续的结构性支持对于患者组织有效地代表他们的社区至关重要.
- 准确识别不平等需要定义的决定因素和链接的癌症数据注册表.
结论:
- 尊重患者权利需要通过持续对话了解他们的需求.
- 长期的结构性支持使患者组织成为专业代表.
- 解决癌症不平等问题取决于可靠的数据和清晰的监测决定因素.
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