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应对不确定的未来:一项调查研究,调查慢性病患者实际上想知道的是什么
Jet Milders1, Chava L Ramspek2, Yvette Meuleman1
1Department of Clinical Epidemiology, Leiden University Medical Center, Leiden, The Netherlands.
Clinical kidney journal
|August 27, 2024
概括
慢性病患者经常考虑他们的未来,并希望获得更多的预后信息. 许多患者希望与医生讨论他们的预后,但目前没有.
科学领域:
- 腎臟病學 (nephrology) 是一種醫學.
- 患者为中心的护理
- 卫生沟通健康沟通
背景情况:
- 预后不确定性是慢性病 (CKD) 患者的一个重大问题.
- 了解患者对预后信息的偏好对于改善护理至关重要.
- 之前的研究还没有充分探索患者对CKD未来前景的愿望.
研究的目的:
- 评估慢性病患者在多大程度上希望了解他们未来的信息.
- 确定CKD患者优先考虑的预后信息的具体主题.
- 探索不同CKD患者小组中这些偏好的变化.
主要方法:
- 在与荷兰病患者协会合作开发和验证了一项调查.
- 该调查包括有关人口统计,未来考虑和预测信息偏好的部分.
- 从163名CKD患者 (所有阶段) 通过患者协会和医疗保健专业人员收集数据,结果按人口,性别和年龄分层.
主要成果:
- 大多数CKD患者 (56.4%) 偶尔或 (35.0%) 经常考虑自己的未来.
- 显著的大多数 (73.6%) 想要更多的预后信息,重点是实验室值,症状和身体健康.
- 近一半 (49.7%) 的人与科医生讨论他们的未来,而19.6%的人希望但目前没有.
结论:
- 慢性病患者积极考虑自己的未来,并寻求详细的预后信息.
- 显著比例的患者希望与医疗保健提供者就他们的未来进行讨论,但没有得到讨论.
- 显然需要个性化预后信息传递,以与临床实践和研究中的患者偏好保持一致.
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