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在淋巴瘤幸存者中做好幸存者准备和激活
Sharon L Manne1, Shawna V Hudson2, Dena O'Malley2
1Rutgers Cancer Institute of New Jersey, 120 Albany Street, Tower 2 Floor 8, New Brunswick, NJ, 08901, USA. mannesl@cinj.rutgers.edu.
Journal of cancer survivorship : research and practice
|August 27, 2024
概括
许多淋巴瘤幸存者缺乏激活和准备治疗后护理. 提供者对幸存者过渡实践的讨论对患者的激活和准备有重大影响.
科学领域:
- 在瘤学瘤学.
- 医疗保健服务研究 医疗服务研究
- 患者的治疗结果.
背景情况:
- 积极的自我管理对于成功的癌症幸存者和改善患者结果至关重要.
- 本研究探讨了激活和准备,这是癌症幸存者自我管理的关键组成部分.
- 激活涉及患者对管理自我护理的理解,知识,技能和信心.
- 准备程度与对治疗后生命信息的感知充足程度有关.
研究的目的:
- 描述淋巴瘤幸存者在治疗完成后五年内生存激活和准备情况.
- 研究社会人口统计学,医疗,护理过渡,实践和心理社会因素与激活和准备之间的关联.
- 了解提供者沟通在促进幸存者自我管理中的作用.
主要方法:
- 对101名霍奇金淋巴瘤或非霍奇金淋巴瘤幸存者进行了一项调查,这些幸存者在过去五年内完成了治疗.
- 该调查评估了幸存者护理经验,重点关注激活和准备.
- 该调查的响应率为34.12%.
主要成果:
- 大约60%的幸存者报告了高度激活和高度准备.
- 活化较低的幸存者是年轻的,已婚的,来自贫困地区的,并且报告了更多的疲劳和信息需求.
- 较低的激活与提供者较少讨论长期副作用,心理社会需求,生活方式建议和其他医疗问题有关.
- 较少的护理过渡实践与较低的准备能力密切相关.
结论:
- 很大一部分淋巴瘤幸存者没有充分激活为幸存者护理.
- 患者激活和准备都与医疗保健提供者的生存过渡实践密切相关.
- 建议加强对后续护理和健康生活方式的教育计划.
- 提供者应定期评估患者的信心和为生存做好准备,并提供适当的转诊.
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