在炎症性肠道疾病的现代治疗时代对患者关注的研究
Victoria Gsenger1, Adriana Rodriguez2, Elizabeth Araka2
1Paracelsus Medical University Salzburg, Strubergasse 21, 5020 Salzburg, Austria.
患者的担忧,如药物的副作用和能量水平,是管理炎症性肠病 (IBD) 的关键. 除了疾病缓解之外,解决这些问题对于有效的患者护理和共同决策至关重要.
科学领域:
- 胃肠病学 胃肠病学
- 患者报告的结果
- 医疗保健服务研究 医疗服务研究
背景情况:
- 患者的担忧和偏好显著影响着炎症性肠病 (IBD) 的管理,包括克罗恩病 (CD) 和性结肠炎.
- 缺乏关于患者在IBD管理中的关注和偏好的当代数据,需要更新研究.
- 了解患者关注的人口和疾病相关差异对于个性化护理至关重要.
研究的目的:
- 确定患者在IBD管理中的当前关注点和偏好.
- 确定影响这些问题的人口和疾病相关因素.
- 为了比较患者和提供者对患者担忧的看法.
主要方法:
- 在2023年7月至9月期间,麻省总医院对350名IBD患者和30名提供者进行了一项调查.
- 使用炎症性肠病患者关注的评级表格 (RFIPC) 和视觉模拟尺度问题来评估患者的关注.
- 分析了数据,根据年龄,疾病类型,性别和手术状态进行了比较,并收集了提供者的看法.
主要成果:
- 药物效应 (中位数=54),能量水平 (中位数=53) 和口腔袋 (中位数=52) 是患者最担心的问题.
- 35-59岁的患者在大多数疾病和治疗相关问题中表达了最大的关注.
- 虽然老年和年轻的患者有相似的担忧,但性别,疾病活动和手术史影响了患者的担忧. 提供者高估了患者的担忧.
结论:
- 在IBD护理中,共享决策方法至关重要.
- 专注于疾病缓解和高度评价的患者关切,优化了治疗目标.
- 调整患者和提供者对担忧的理解,可以改善IBD管理结果.
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