在智力和发育障碍的人群中对COVID-19的研究中的代理响应
Sarah Lineberry1, Matthew Bogenschutz1, Michael Broda1
1Sarah Lineberry, Matthew Bogenschutz, and Michael Broda, Virginia Commonwealth University.
American journal on intellectual and developmental disabilities
|August 28, 2024
概括
在关于智力和发育障碍 (IDD) 的研究中,代理响应与独立响应有很大的不同. 这突显了在理解IDD患者经历的潜在偏见,特别是在COVID-19等健康危机期间.
科学领域:
- 医疗保健服务研究 医疗服务研究
- 关于残疾人的研究.
- 健康 结果 研究 研究 结果
背景情况:
- 对智力和发育障碍者 (IDD) 进行包容性研究方法的呼吁仍然存在.
- 代理反应很常见,但可能不完全代表IDD个体的观点.
- 随着COVID-19的流行,人们越来越需要对IDD的健康结果进行研究,因为IDD对健康的影响不成比例.
研究的目的:
- 探索有关IDD患者的研究中代理反应的模式.
- 用代理数据与独立数据分析响应模式的差异.
主要方法:
- 使用探索性图形分析 (EGA).
- 分析了来自国家核心指标面对面调查的COVID-19补充的数据.
- 在独立,代理和混合响应组中比较响应模式.
主要成果:
- 在独立,代理和混合响应组之间观察到响应模式的显著差异.
- 这些差异超过了仅仅归因于人口变化的差异.
- 与自我报告的数据相比,代理响应可能会引入不同的模式.
结论:
- 代理响应在IDD患者的调查数据中引入了独特的模式.
- 研究结果表明,在IDD研究中解释代理数据时需要谨慎.
- 需要进一步的研究来理解和减轻代理使用的潜在偏见.
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