促进晚期耐治疗癌症患者瘤学家沟通:开发和可行性测试一个问题提示列表
A Rault1, S Dolbeault1,2, J Terrasson1
1Psycho-Oncology Unit and Department of Supportive Care, Institut Curie, SHARE Curie, PSL University, Paris, France.
Pilot and feasibility studies
|August 28, 2024
概括
这项研究开发了一个问题提示列表 (QPL),以改善法国瘤学家和晚期癌症患者之间的沟通. 该QPL帮助患者提出有关其疾病,治疗和预后的关键问题.
科学领域:
- 在瘤学瘤学.
- 医学沟通 医学沟通
- 以患者为中心的护理
背景情况:
- 了解晚期癌症患者信息需求对于量身定制的护理至关重要.
- 有效的沟通策略对于面临转移性疾病或治疗耐药性的患者至关重要.
- 为法国的晚期癌症环境开发了一种患者瘤学家沟通辅助工具.
研究的目的:
- 为晚期癌症患者开发和验证一个问题提示清单 (QPL).
- 加强有关癌症护理关键方面的患者瘤学家沟通.
- 创建一个简洁和可接受的工具,用于瘤学临床使用.
主要方法:
- 一种四步混合方法的方法,涉及110名患有转移性乳腺癌或皮膜黑色素瘤的患者,合作伙伴和18名瘤学家/研究人员.
- 深度访谈和调查问卷评估了信息需求,问题制定和工具的可接受性.
- 通过多个开发和验证阶段反复改进QPL.
主要成果:
- 最初的QPL包括5个主题中的17个问题;随后的改进将其减少到一个更短的形式,包括建议.
- 最终的QPL经历了代修改,包括基于专家和患者反的合并和删除问题.
- 四名瘤学家和20名患者参与了最终评估,对该工具进行了积极评估.
结论:
- 一个严格开发的,相关的,简洁的,可接受的问题提示列表 (QPL) 现在可用于法国的晚期癌症护理.
- 需要进一步的研究来评估QPL对瘤科医生-患者沟通,患者满意度和健康结果的影响.
- 该QPL旨在通过促进有关其癌症旅程的重要讨论来赋予患者权力.
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