揭示儿童多发性硬化症疾病感知的心理后果:一项亲子研究
Roy Aloni1,2, Gaya Asher1, Amichai Ben-Ari1
1Department of Psychology, Ariel University, Ariel 4077625, Israel.
Children (Basel, Switzerland)
|August 29, 2024
概括
儿科发病多发性硬化症 (POMS) 的儿童与他们的父母之间的疾病感知对齐至关重要. 差异增加了患有POMS的儿童焦虑和抑郁的风险.
科学领域:
- 儿科神经学 儿科神经学
- 儿童心理学 儿童心理学
- 慢性疾病管理 慢性疾病管理
背景情况:
- 疾病感知显著影响慢性疾病管理,特别是在多发性硬化症.
- 在儿科发病多发性硬化症 (POMS) 中对疾病感知及其对儿童福祉的影响的研究是有限的.
- 父母的疾病感知及其与孩子的感知一致性需要进一步调查.
研究的目的:
- 探索患有POMS的儿童及其父母的疾病感知.
- 检查不同儿童-家长疾病感知对情感福祉的影响.
- 识别感知差异与精神健康并发症之间的潜在联系.
主要方法:
- 一项涉及65个孩子 (年龄在10-17岁) 和他们的父母的比较研究.
- 第一组:32个被诊断患有POMS的儿童和他们的父母.
- 第二组:33个健康儿童和他们的父母.
主要成果:
- 与健康对照组相比,患有POMS儿童的可能焦虑率 (73.1%) 和抑郁率 (43.8%) 显著增加.
- 在POMS儿童和他们的父母之间,在疾病感知维度 (后果,个人控制,身份,控制因素) 中观察到显著差异.
- 儿童与父母对疾病的感知差异与伴随性焦虑和抑郁症的可能性增加了37%.
结论:
- 患有POMS的孩子和他们的父母之间的疾病感知对齐对于情感健康至关重要.
- 医疗保健提供者应实施针对疾病感知一致性的干预措施.
- 解决感知差异可能会减轻POMS中焦虑和抑郁症并发症的风险.
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