在COVID-19大流行之前和期间,为患有多发性硬化症的人提供一天健康计划的结果
Tiffany Malone1, John A Schafer1, Lacey Sayre1
1From the Dignity Health John A. Schafer, MD Multiple Sclerosis Achievement Center, Citrus Heights, CA.
International journal of MS care
|August 29, 2024
概括
多发性硬化症 (MS) 参与者的健康计划在四年内改善了疾病影响和运动水平. 然而,自我效能和社会参与度有所下降,可能是由于COVID-19大流行中断.
科学领域:
- 神经学 神经学
- 康复医学 康复医学 康复医学
- 公共卫生 公共卫生
背景情况:
- 约翰·A·舍弗,MD多发性硬化症成就中心 (MSAC) 为患有多发性硬化症 (MS) 的人及其护理伙伴提供全面的健康计划.
- 这些项目整合了运动,认知刺激,教育,情感支持和社交.
- 患者报告的结果 (PRO) 每年收集一次,四年数据捕捉了COVID-19大流行期间和虚拟程序交付.
研究的目的:
- 为了评估多发性硬化症患者结构化的日间健康计划的4年结果.
- 评估COVID-19大流行对计划参与者的自我报告结果的影响.
主要方法:
- 基线数据是在2017年从110名MSAC日间健康计划参与者采用PRO措施收集的.
- 52名参与者通过2021年完成了年度PRO.
- 结果措施包括多发性硬化症影响量表 (MSIS-29),多发性硬化症自效量表 (MSSE-10),戈丁休时间运动问卷 (GLTEQ) 和各种神经学生活质量领域.
主要成果:
- 与基线相比,四年分析显示MSIS-29和GLTEQ得分在统计学上显著改善.
- 参与社会角色和活动的能力的改善在2年和3年是显著的,但在4年并非如此.
- 在4年与基线和3年相比,MSSE-10的显著下降被观察到.
结论:
- 参与一个结构化的每周一天健康计划导致了4年来MS患者自我报告的疾病影响和身体活动水平的改善.
- 人们注意到自我效能和社会功能下降,与大流行相关的干扰相吻合.
- 需要进一步的研究才能充分了解大流行对健康计划参与者的具体影响.
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