在研究伙伴关系计划中理解共同创作 探索患者驱动的创新:一种定性纵向研究
Hanna Jansson1, Jamie L Luckhaus1, Henna Hasson1,2
1Department of Learning, Informatics, Management and Ethics, Medical Management Centre, Karolinska Institutet, Stockholm, Sweden.
概括
这项研究探讨了患者创新者和研究人员在研究伙伴关系中如何理解共同创造. 出现了四种不同的理解,突出了输入,流程和输出对于成功的患者创新和研究相关性的重要性.
科学领域:
- 患者和公众参与研究.
- 医疗保健服务研究 医疗服务研究
- 定性研究方法 定性研究方法
背景情况:
- 成功的共同创作在研究中取决于共同的理解,但实际应用揭示了不同的观点.
- 这项研究探讨了患者创新者和研究人员如何构思和实施共同创造的变化.
研究的目的:
- 探索在合作研究计划中患者创新者和研究人员之间共同创造的不断发展的理解.
- 识别共同创作概念化的核心组成部分和变化.
主要方法:
- 采用了一个探索性的,纵向的定性研究设计.
- 在"驾驶座位上的患者"合作研究计划中进行了58次采访.
- 使用反射主题分析来分析采访数据.
主要成果:
- 通过输入-流程-输出模型识别和概念化了四种不同的理解共同创造的方法.
- 关键主题包括:结合多样化的视角 (输入),动态和探索性过程,争取公平 (而不是平等),以及多样化的价值创造 (有形/无形输出).
- 这些主题共同说明了伙伴关系成员之间多样化的共同创造理解.
结论:
- 共创是通过患者创新者和研究人员之间独特但互补的视角来理解的.
- 该研究提出,共同创造可以被视为其基本组成部分的总和:输入,过程和输出.
- 加强对共同创造的理解旨在提高患者和非正式护理人员在患者创新研究中的研究相关性.
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