耻辱感,发作自我有效性和患者儿童的生活质量
Seren Aydin1, Gökçen Öz Tunçer2, Şeyma Genç3
1Division of Pediatric Neurology, Department of Pediatrics, Faculty of Medicine, Ondokuz Mayıs University, Samsun, Turkey. serenaydin5228@gmail.com.
高度感知的耻辱感会对儿童的发作自我有效性和生活质量 (QoL) 产生负面影响. 解决耻辱是有效的管理和改善生活质量的关键.
科学领域:
- 儿科神经学 儿科神经学
- 儿童心理学 儿童心理学
- 生活质量研究 研究 生命质量研究
背景情况:
- 对于患有的儿童,整体治疗不仅仅是控制,还包括社会,行为和心理方面的治疗.
- 患有的儿童的生活质量 (QoL) 受这些更广泛的维度的影响.
研究的目的:
- 为了调查患者和家长在患有的儿童中感知到的耻辱感.
- 为了评估发作儿童的自我有效性.
- 检查耻辱,自我效能和QOL之间的关系,考虑社会人口统计学和相关因素.
主要方法:
- 一个研究小组包括患有 (持续时间≥6个月) 的儿童 (8-18岁) 和他们的父母.
- 评估使用了儿科生活质量库存 (PedsQL),儿童-家长耻辱度量表和儿童发作自效度量表 (SSES-C).
主要成果:
- 有144名儿童参加;平均年龄12.6岁,女性48.6%.
- 在儿童报告的耻辱感和QOL (PedsQL-CsR) 之间发现了显著的负相关性.
- 在自效率 (SSES-C) 和QoL (PedsQL-CsR) 之间观察到显著的正相关性.
结论:
- 患有的儿童和他们的父母报告了增加的耻辱感.
- 增加的耻辱感会对发作的自我有效性产生负面影响,可能会影响儿童的 QoL.
- 解决耻辱对综合性管理和改善儿科的结果至关重要.
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