饮食和多发性硬化症 - - 开发和混合方法可行性测试一个全面的营养信息资源 (NUTRIMS)
Karin Riemann-Lorenz1, Nicole Krause1, Claudia H Marck2
1Institute of Neuroimmunology and Multiple Sclerosis (INIMS), University Medical Center Hamburg-Eppendorf, Hamburg, Germany.
Disability and rehabilitation
|September 1, 2024
概括
多发性硬化症患者需要明确的饮食指导. 一个新的基于证据的营养资源NUTRIMS被开发来满足他们的信息需求,并被发现是非常有用和可信的.
科学领域:
- 营养科学 营养科学
- 神经学 神经学
- 公共卫生 公共卫生
背景情况:
- 矛盾的饮食建议往往会让患有多发性硬化症 (pwMS) 的人感到困惑.
- 需要一个可靠的,基于证据的营养信息资源,适合 pwMS.
研究的目的:
- 探索pwMS关于饮食的特定信息需求.
- 设计和开发一个全面的,基于证据的饮食和MS的营养信息资源,名为NUTRIMS.
主要方法:
- 采用了混合方法的方法,分为三个阶段:通过pwMS的重点小组进行需求评估,在资源草案上获得利益相关者的反,以及进行内容评估的在线调查.
- 焦点小组确定了对MS特定证据的关键兴趣,这些证据涉及食品组,营养素和特殊饮食.
- 一项在线调查评估了pwMS开发的NUTRIMS资源的内容质量和可接受性.
主要成果:
- 12个pwMS的焦点小组强调对MS特定的饮食证据的兴趣.
- 利益相关者的反改进了NUTRIMS草案,最终形成了一个81页的资源,包含科学参考文献,插图和词典.
- 一个在线调查与85 pwMS表明高满意度,可信度和NUTRIMS的有用性饮食决策.
结论:
- 一种协作研究方法成功地为患有多发性硬化症的人提供了受欢迎的营养信息资源.
- 由pwMS开发的NUTRIMS资源被认为是可理解的,可信的和有用的,解决了关键的信息差距.
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