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加拿大改善对炎症性肠病护理的准入:患者的体验
Shehzeen Lalani1, Holly Mathias2, Courtney Heisler3
1Internal Medicine Resident, Faculty of Medicine and Health Sciences, McGill University, Montreal, QC, Canada.
患有炎症性肠病 (IBD) 的患者在获得护理方面面临障碍,包括门卫知识缺口和缺乏整体的,以患者为中心的服务. 改进需要直接访问,熟练的提供者和多学科团队,以更好地管理IBD.
科学领域:
- 胃肠病学 胃肠病学
- 医疗保健服务研究 医疗服务研究
- 患者体验 患者体验
背景情况:
- 加拿大的炎症性肠病 (IBD) 发病率很高,由于患者数量和资源限制,对护理质量提出了重大挑战.
- 患者对IBD护理障碍的看法在很大程度上仍未被探索,需要对他们的生活经历进行研究.
研究的目的:
- 调查和了解患者在加拿大获得炎症性肠病 (IBD) 护理时遇到的障碍.
- 从患者的角度来看,在IBD管理中确定改善卫生系统的关键领域.
主要方法:
- 一个探索性的定性设计,利用十四个焦点小组,在2018年在加拿大八个省份有63名参与者.
- 通过患者倡导团体,诊所和社交媒体,有目的地招募成年IBD患者和护理人员.
- 对记录和转录的焦点小组讨论进行主题分析.
主要成果:
- 在障碍方面出现了四个主要主题:守门员知识缺陷,财务和时间限制,整体护理不足以及非患者为中心的方法.
- 四个主题突出了所需的改进:直接访问专家,高质量的提供者,综合电子健康记录和多学科的IBD梦想团队.
结论:
- 这项研究解决了有关IBD护理患者体验的全球知识差距.
- 研究结果为制定有针对性的护理计划和政策提供了有价值的见解,以减轻已确定的IBD护理差距.
- 患者识别的系统级障碍和改进建议对于有效的医疗保健重新设计和IBD政策改革至关重要.
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