评估患者报告的结局在玻璃瘤界面障碍:一个系统的文献综述
Jarinne E Woudstra-de Jong1, Jan J Busschbach2, Sonia S Manning-Charalampidou3
1Rotterdam Ophthalmic Institute, Eye Hospital Rotterdam, Rotterdam, the Netherlands; Department of Psychiatry, Section Medical Psychology and Psychotherapy, Erasmus Medical Centre, Rotterdam, the Netherlands.
Survey of ophthalmology
|September 2, 2024
概括
患者报告的结局指标 (PROMs) 对于玻璃瘤疾病的内容有限,质量不明. 需要新的PROM来准确地捕捉患者的生活质量,例如黄斑孔和视网膜膜.
科学领域:
- 眼科医生 眼科 眼科
- 患者报告的结果
- 视网膜疾病 视网膜疾病
背景情况:
- 患者报告的结果测量 (PROM) 对于评估疾病对生活质量的影响至关重要.
- 玻璃膜界面障碍,包括黄斑孔,视网膜和玻璃膜引,显著影响患者的视觉功能和日常生活.
研究的目的:
- 审查和评估目前用于玻璃瘤界面障碍的PROM.
- 评估现有PROM的内容覆盖面和心理测量质量.
- 识别当前PROM和患者确定的生活质量问题之间的差距.
主要方法:
- 对86项使用PROMs治疗玻璃瘤界面障碍的研究进行了系统审查.
- 分析了2项详细介绍患者生活质量问题的定性研究.
- 对PROM内容的评估与定性发现的评估以及对心理测量属性的评估.
主要成果:
- 目前的PROM显示内容覆盖范围有限,并具有很大程度上未知的心理测量质量.
- 国家眼科视觉功能问卷是最常用的PROM.
- 很少有特定条件的PROM涉及患者咨询,并且与患者报告的生活质量问题的重叠是最小的.
结论:
- 现有的PROM不充分地捕捉了患有玻璃瘤界面障碍的患者对生活质量影响的全部范围.
- 在这个领域,有很大需要开发和验证强大的以患者为中心的PROM.
- 改善PROM对于准确评估和管理这些视网膜疾病至关重要.
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