儿童深度智力和多重残疾的兄弟姐妹的经验:一个定性系统审查协议
Yuta Koto1,2, Masami Tanaka1, Shingo Ueki2,3
1Graduate School of Nursing, Faculty of Nursing, Kansai Medical University, Hirakata, Osaka, Japan.
JBI evidence synthesis
|September 3, 2024
概括
患有严重智力障碍和多重残疾儿童的兄弟姐妹经常成为年轻的照顾者. 这篇评论综合了他们的经验,为这些被忽视的家庭成员提供更好的支持策略.
科学领域:
- 关于残疾人的研究.
- 家庭照顾 家庭照顾
- 定性研究是指质量研究.
背景情况:
- 深度智力和多重残疾 (PIMD) 儿童的预期寿命增加将重点转移到家庭和社区护理.
- 兄弟姐妹经常承担照顾者的角色,并承担重大负担.
- 了解兄弟姐妹的经历对于开发有针对性的支持至关重要.
研究的目的:
- 系统地审查和综合PIMD儿童兄弟姐妹的定性经验.
- 为了确定这些兄弟姐妹所面临的挑战,负担和日常生活中的困难.
- 为制定有效的支持策略提供信息.
主要方法:
- 根据JBI方法论对定性证据的系统审查.
- 在多个数据库 (MEDLINE,CINAHL Plus,PsycINFO,Scopus,Ichushi-Web,CiNii) 进行全面的搜索,没有语言或日期限制.
- 由两个独立审稿人进行的数据综合,使用ConQual方法进行评估.
主要成果:
- 将合成质量研究,探讨兄弟姐妹在照顾负担,挑战和日常生活困难方面的经验.
- 研究结果将揭示兄弟姐妹角色的多面性及其影响.
- 审查将突出不同环境 (家庭,社区,学校,医院) 的共同主题.
结论:
- 综合兄弟姐妹经验对于增强支持系统至关重要.
- 结果将指导创建针对PIMD儿童兄弟姐妹的独特需求的干预措施.
- 本综述解决了了解PIMD护理的家庭动态的关键差距.
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