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导航生活与帕金森病:焦点小组研究应对策略和考虑自我管理支持的考虑
Maud M J Daemen1, Bouke A A G De Bruijn-Heijligers2, Colin Van Der Heijden2
1Department of Psychiatry and Neuropsychology/Alzheimer Center Limburg, Mental Health and Neuroscience Research Institute, Maastricht University, Maastricht, The Netherlands.
Journal of advanced nursing
|September 3, 2024
概括
患有帕金森病 (PD) 的人使用动态应对策略,通过实现和情绪体验进行过渡. 量身定制的自我管理支持计划可以改善PD患者的适应能力和生活质量.
科学领域:
- 神经学 神经学
- 心理学 心理学 心理学
- 健康科学 卫生科学 卫生科学
背景情况:
- 帕金森病 (PD) 带来了影响日常生活的独特挑战.
- 对于患有PD的人来说,有效的应对和适应策略至关重要.
- 自主管理支持计划需要根据个体患者的需求量身定制.
研究的目的:
- 探索帕金森病患者的应对和适应经验.
- 确定为PD患者开发个性化的自我管理支持计划的关键考虑因素.
主要方法:
- 进行了一项描述性的现象学焦点小组研究.
- 五个半结构化的焦点小组涉及12名帕金森病患者.
- 两位独立研究人员进行了诱导性内容分析.
主要成果:
- 出现了三个类别:应对策略过渡 (否认,承认,主动应对),影响因素 (心态,社会支持,获得护理) 和自我管理考虑 (心理情绪支持,生活方式,自主).
- 应对是个人的,动态的过程,有关键的过渡点.
- 关键的自我管理领域包括情绪支持,生活方式,同行支持和保持身份.
结论:
- 帕金森病的应对和适应是个性化和动态的,涉及战略之间的过渡.
- 量身定制的自我管理支持可以提高在这些过渡期间的应对能力,改善适应.
- 个性化支持可以提高自我效能,提高生活质量,并可能减少PD患者的医疗保健利用率.
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