在复发性白炎中进行大肠切除术的决策援助:开发和可用性研究
Alexander T Hawkins1, Andrea Fa1, Samuel A Younan1
1Division of General Surgery, Section of Colon & Rectal Surgery, Vanderbilt University Medical Center, Nashville, TN, United States.
JMIR formative research
|September 3, 2024
概括
一个新的在线决策辅助工具 (DA) 帮助患者和外科医生讨论复发性分泌炎的治疗选择. 该工具通过澄清风险,益处和患者价值来支持个性化护理,以便更好地共享决策.
科学领域:
- 胃肠病学 胃肠病学
- 医疗信息学 医疗信息学
- 患者教育 患者教育
背景情况:
- 脊椎病每年影响数百万人,对于复发病例的治疗决定往往缺乏个性化的工具.
- 目前的指导方针强调个性化治疗膜炎的建议,但实际的帮助很少.
研究的目的:
- 开发一个在线教育决策辅助 (DA) 对于复发的左侧膜炎.
- 加强外科医生和患者之间关于治疗选择的沟通.
主要方法:
- 采用了经过修改的设计冲刺方法,涉及多学科团队.
- 原型通过混合方法评估,可用性测试和与患者和外科医生的认知访谈来代地改进.
- 在临床中进行了可行性测试.
主要成果:
- 一个DA的原型,包括一个交互式网站和手册,在为期4天的设计冲刺中被开发出来.
- 该DA包括关于膜炎的教育内容,治疗选择的风险效益分析 (医疗管理与切除术),以及价值澄清练习.
- 患者可以打印总结,以指导在诊所预约期间的共享决策.
结论:
- 设计冲刺方法,包括利益相关者共同设计和用户测试,对于创建决策辅助工具是有效的.
- 开发的DA提供了一种有效的策略,以支持复发性分泌体炎患者做出关键治疗决策.
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