评估癌症患者报告的经验,与健康素养最佳实践对比
Eleni Giannopoulos1, Lesley Moody2,3, Rebecca MacKinnon1,4
1Cancer Health Literacy Research Centre, Princess Margaret Cancer Centre, 585 University Avenue, ELLICSR PMB B-130, Toronto, ON, M5G 2N2, Canada.
概括
癌症护理的患者报告结果指标 (PROM) 在可读性和可理解性方面往往不足. 未来的PROMs开发必须涉及低健康素养的患者,以确保准确地捕捉他们的经验.
科学领域:
- 在瘤学瘤学.
- 医疗保健服务研究 医疗服务研究
- 患者体验 患者体验
背景情况:
- 积极的患者体验与改善的癌症治疗坚持和结果有关.
- 患者报告的结果测量 (PREM) 对于评估患者体验至关重要.
- 确保PREM与健康素养最佳实践保持一致,对于准确的数据收集至关重要.
研究的目的:
- 评估常用的癌症PREM是否遵循健康素养最佳实践进行开发.
- 研究癌症PREM的发展过程,包括患者和专家的参与.
- 根据以患者为中心的护理原则,评估癌症PREM的全面性.
主要方法:
- 使用验证的可读性计算器和仪器来评估PREM可读性和可理解性.
- 在PREM开发过程中收集了关于调查项目,患者参与和专家咨询的数据.
- 应用了Picker框架来评估PREM综合性与以患者为中心的护理原则.
主要成果:
- 分析了35项癌症PREM研究,显示平均阅读等级水平为9.7,超过推的6.
- 在理解性方面,PREM的平均得分为74%,低于最佳>80%的值.
- 在PREM中,平均49个项目,超过了推的25-30个项目,而且大多数都包括双面问题.
结论:
- 分析的癌症PREMs不符合可读性和可理解性的既定门.
- 这可能导致低健康素养患者的经验被低估.
- 未来的PREM开发应该优先考虑患者参与,特别是那些健康素养较低的人,以确保包容性.
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