关于护理和歧视的看法:对患有状细胞病的成年人进行定性评估
Cindy A Crusto1,2, Joy S Kaufman1, Zachary M Harvanek1
1Department of Psychiatry, Yale School of Medicine, 300 George Street, New Haven, CT, 06511, USA.
Journal of racial and ethnic health disparities
|September 3, 2024
概括
患有状细胞疾病 (SCD) 的成年人经历了医疗保健歧视和偏见,经常觉得被刻板印象为寻找药物. 缺乏沟通和缺乏医疗服务提供者的理解导致这些患者的护理延迟.
科学领域:
- 医学社会学 医学社会学
- 健康差距 研究 研究 研究 研究
- 血液学 血液学 血液学
背景情况:
- 状细胞病 (SCD) 不成比例地影响美国的黑人/非洲裔美国人.
- SCD带来了重大的公共卫生和经济挑战.
- 了解患者的体验对于改善护理至关重要.
研究的目的:
- 评估患有SCD的成年人经历的医疗保健歧视.
- 评估SCD护理中患者提供者关系的质量.
- 确定患者报告的问题和改善护理的建议.
主要方法:
- 六个重点小组的定性主题分析.
- 在专门的门诊诊所对18名成人SCD患者进行.
- 在2018年10月至2019年3月期间收集的数据.
主要成果:
- 参与者报告了基于SCD诊断和种族的歧视.
- 患者经常觉得他们被刻板印象为"寻找药物".
- 缺乏提供者理解和沟通不良导致护理延迟.
结论:
- 种族偏见和诊断刻板印象会对SCD患者的护理产生负面影响.
- 改善提供者沟通和SCD教育是必不可少的.
- 解决歧视问题对于公平的SCD管理至关重要.
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