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(重新) 思考自我伤害和自闭症:自闭症成年人自我伤害在线定性研究的结果
Sarah Je Marsden1, Rachael Eastham1, Alexandra Kaley2
1Lancaster University, UK.
Autism : the international journal of research and practice
|September 4, 2024
概括
自闭症成年人使用自我伤害行为来应对焦虑,抑郁和感官过载. 这项定性研究强调了他们寻求这些行为专业帮助的经验和挑战.
科学领域:
- 心理学 心理学 心理学
- 神经多样性研究 神经多样性研究
- 心理健康研究 心理健康研究
背景情况:
- 与一般人群相比,自闭症个体表现出更高的自我伤害行为率和与之相关的精神健康状况,如焦虑和抑郁症.
- 以前的自闭症研究经常优先考虑外部观点 (父母,临床医生) 而不是自闭症患者的直接经历.
- 现有的研究主要量化自我伤害行为,分类类型,并确定功能,不太关注自闭症成年人的生活经历.
研究的目的:
- 探索自闭症成年人如何体验和理解他们的自我伤害行为.
- 分析在线论坛讨论的主题,以捕捉自闭症成年人的真实声音.
- 从内部人士的角度,从自闭症社区中对自伤行为提供细微的理解.
主要方法:
- 使用在线论坛讨论数据的定性方法.
- 对文本数据进行主题分析,以确定新出现的主题.
- 专注于自闭症成年人自我报告的经验和解释.
主要成果:
- 自伤行为被自闭症成年人用来应对焦虑,抑郁,压力和感官/心理过载的应对机制.
- 包括刺激在内的重复行为可以作为自我安抚机制,但如果造成组织损伤,也可能构成自我伤害.
- 刺激和化,如果导致组织损伤,可以被视为自我伤害,并在成年时经常受到污名化.
- 自闭症成年人因专业的怀疑,低估他们的经验或缺乏自闭症特定知识而面临着在获得自我伤害专业帮助方面的重大障碍.
结论:
- 自闭症成年人的自我伤害是一种复杂的应对策略,与管理内部痛苦和过度负担有关.
- 迫切需要提高专业对自闭症的理解,以及它对自伤行为的影响.
- 医疗保健专业人员必须认可并认真对待自闭症成年人自我报告的经历,以提供有效的支持.
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