多发性硬化症治疗负担的患者和医生观点
Barry A Singer1, Dawn Morgan2, Julie A Stamm3
1The MS Center for Innovations in Care, Missouri Baptist Medical Center, St. Louis, MO, 63131, USA. drbarrysinger@gmail.com.
Neurology and therapy
|September 4, 2024
概括
管理多发性硬化症 (MS) 涉及由于复杂的疾病修饰疗法 (DMT) 造成的重大治疗负担. 解决患者的观点和改善沟通是尽量减少这种负担和提高结果的关键.
科学领域:
- 神经学 神经学
- 药理学 药理学是指药理学的学科.
- 患者为中心的护理
背景情况:
- 多发性硬化症 (MS) 治疗领域已经扩展到许多疾病修饰疗法 (DMT).
- 增加的DMT选择增加了管理的复杂性,风险-收益概况和成本.
- 患有多发性硬化症的患者面临着疾病和治疗负担,影响生活质量和坚持.
研究的目的:
- 检查导致多发性硬化症患者治疗负担的因素.
- 突出患者的观点,以了解和管理治疗负担.
- 提出减轻MS管理中的治疗负担的战略.
主要方法:
- 综述当前关于多发性硬化症治疗负担的文献.
- 包含患者作者观点,以强调生活经验.
- 分析影响患者执法,满意度和生活质量的因素.
主要成果:
- 在MS的治疗负担是多因素的,包括管理困难,不同的患者-HCP优先级和社会经济成本.
- 患者的坚持和满意度受到治疗负担的重大影响.
- 有效的沟通,共享决策和HCP支持对于减轻负担至关重要.
结论:
- 尽量减少治疗负担对于改善多发性硬化症患者的治疗结果和生活质量至关重要.
- 将患者的观点和共享决策融入临床实践至关重要.
- 临床指南应考虑治疗负担,以优化多发性硬化症治疗.
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