将神经瘤患者,护理人员和提供者对息护理的知识和看法与美国代表进行比较. 样本 样本 样本 样本 样本
Jung-Young Kim1, Juliet C Dalton2, Nicole Cort1
1The Preston Robert Tisch Brain Tumor Center, Duke University School of Medicine, Durham, NC, USA.
The American journal of hospice & palliative care
|September 5, 2024
概括
患有原发性脑瘤 (PBT) 的患者及其护理人员对息治疗 (PC) 有知识差距. 解决这些误解对于改善PC整合和支持PBT患者至关重要.
科学领域:
- 神经瘤学神经瘤学
- 抚慰性护理是一种缓解性护理.
- 医疗保健服务研究 医疗服务研究
背景情况:
- 原发性脑瘤 (PBTs) 对患者和护理人员来说构成重大挑战.
- 早期息治疗 (PC) 整合有利于晚期癌症,但其在PBT,特别是质母细胞瘤 (GBM) 中的应用是复杂的.
- 以前的PC整合努力可能因患者,护理人员和提供者之间的知识差距和误解而受到阻碍.
研究的目的:
- 识别有关息治疗 (PC) 的知识缺口和误解.
- 评估原发性脑瘤 (PBT) 患者,他们的护理人员和医疗服务提供者之间的理解.
主要方法:
- 使用健康信息国家趋势调查 (HINTS) 问题进行电子调查,分发给PBT患者,护理人员和提供者.
- 分析了调查答案,并将这三组与普通人群进行了比较.
主要成果:
- 141名受访者 (59名患者,57名护理人员,25名提供者) 参与了调查.
- 与一般人群相比,所有组都表现出更好地理解PC用于症状管理.
- 患者和护理人员对PC在延长生命治疗,护理人员支持和终身护理中的作用表示不确定.
结论:
- 了解PBT患者和护理人员对PC感知的知识差距对于干预至关重要.
- 护理人员在倡导息护理方面发挥着关键作用.
- 未来的研究应侧重于影响知觉的因素,并制定针对性教育,以便在PBT患者中提前进行PC转诊.
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