调查患者对使用电子健康技术进行炎症性肠道疾病自我管理的观点:混合方法研究
Sander Hermsen1,2, Danielle Tump1, Eva Wentink1
1OnePlanet Research Centre, Precision Health and Nutrition Group, Wageningen, Netherlands.
Journal of medical Internet research
|September 6, 2024
概括
超过一半的炎症性肠病 (IBD) 患者使用信息和通信技术 (ICT) 进行自我管理,由技术亲和力驱动. 解决隐私和安全问题对于更广泛地采用数字健康工具至关重要.
科学领域:
- 数字健康数字健康
- 患者自我管理
- 信息和通信技术 (ICT) 的发展
背景情况:
- 炎症性肠病 (IBD) 给患者带来了持续的挑战,需要持续的自我管理来改善生活质量.
- 有效的自我管理策略对于患有IBD的人来说至关重要,以有效地导航他们的情况.
研究的目的:
- 探索IBD患者对信息和通信技术 (ICT) 用于自我管理的观点.
- 专门研究"智能"马桶座的潜力,作为ICT在IBD自我管理中的一个例子.
主要方法:
- 基于调查问卷对724名患有IBD的参与者进行了分析.
- 使用了描述性的定量,总结性的内容和主题性的定性分析.
- 采用认识网络分析来识别ICT使用模式,用例和障碍.
主要成果:
- 55.9% (n=405) 的参与者积极使用ICT用于IBD自我管理.
- 技术亲和力是用户采用ICT的主要驱动因素.
- 在ICT用户和非用户之间,观察到的使用案例和担忧存在显著差异.
结论:
- 收集了有关患者在IBD自我管理中的ICT观点的宝贵见解.
- 解决隐私,数据安全和可靠的整合对于增加IBD护理中的ICT采用至关重要.
- 未来的努力应侧重于克服障碍,以确保公平获取和有效利用数字健康解决方案.
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