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对患有膀和肠道功能障碍的儿童与下泌尿道功能障碍和健康对照儿童之间的与健康相关的生活质量的比较分析
Hirokazu Ikeda1, Takahiro Ono2, Chisato Oyake2
1Department of Pediatrics, Showa University Yokohama Northern Hospital, Yokohama, Japan. ihirokazu@med.showa-u.ac.jp.
Investigative and clinical urology
|September 9, 2024
概括
患有膀和肠道功能障碍 (BBD) 的儿童在与健康相关的生活质量 (HRQoL) 中显著下降. 那些患有BBD和便失禁 (FI) 的人需要有针对性的情感支持来改善心理社会福祉.
科学领域:
- 儿科泌尿外科 儿科泌尿外科
- 儿童心理学 儿童心理学
- 生活质量研究 研究 生命质量研究
背景情况:
- 下尿道功能障碍 (LUTD) 和膀和肠道功能障碍 (BBD) 在儿童中很常见.
- 评估与健康相关的生活质量 (HRQoL) 对于了解这些疾病的整体影响至关重要.
研究的目的:
- 为了比较BBD,单独LUTD和健康对照的儿童的HRQoL.
- 调查自我报告和母代理报告对HRQoL评估的影响.
- 确定BBD内部影响HRQoL的特定因素.
主要方法:
- 对252名儿童 (78名BBD,174名LUTD) 的临床记录的回顾性审查.
- 使用功能障碍排泄评分系统和罗马IV标准来评估症状.
- 为HRQoL评估进行了儿科生活质量清单4.0 (PedsQL) 的管理.
主要成果:
- 与对照组相比,患有BBD的儿童报告总体PedsQL分数和心理健康状况明显较低.
- 与LUTD组相比,BBD组的情绪功能下降.
- 患有BBD和便失禁 (FI) 的儿童的社会功能得分明显较低.
结论:
- 患有BBD的儿童,特别是患有FI的儿童,面临心理社会HRQoL降低的更高风险.
- 这些孩子需要专门的情感支持和有针对性的干预.
- 有效的治疗和随访对于提高BBD和FI儿童的HRQoL至关重要.
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