失去一个患有严重发育智力障碍的孩子:以色列母亲的讲述
Michal Mahat-Shamir1, Shani Huri-Rotman1
1School of Social Work, Ariel University.
The American journal of orthopsychiatry
|September 9, 2024
概括
哀悼患有严重发育智力障碍的孩子的母亲会经历复杂的情绪,包括悲伤和解脱. 他们的叙述揭示了自我认同的深刻破裂,以及与被剥夺权利的悲伤的持续斗争.
科学领域:
- 心理学 心理学 心理学
- 关于残疾人的研究.
- 悲伤和损失研究研究
背景情况:
- 照顾患有严重发育智力障碍的儿童面临重大挑战.
- 失去这样一个孩子可能会导致一个复杂和独特的悲伤过程的母亲.
研究的目的:
- 探索和描述以色列母亲的意义 (重建) 过程,这些母亲失去了一个患有严重发育智力障碍的孩子.
- 了解个人和社会因素在这个特定的悲伤经历中的复杂相互作用.
主要方法:
- 定性研究采用了对八名母亲的深入,半结构化采访.
- 解释性现象学分析 (IPA) 用于分析母亲的叙述.
主要成果:
- 三个主要的含义模板出现了:哀悼失去的孩子,经历悲伤和缓解的二元性,以及持续的剥夺权利的悲伤.
- 在悲伤的母亲的自我叙述中发现了一个独特的断裂.
- 这些发现突出了与严重残疾儿童生活和失去孩子的交织在一起的现实.
结论:
- 失去患有严重发育智力障碍的孩子的母亲的悲伤经历以独特的挑战和创造意义的过程为特征.
- 了解这些独特的悲伤模式对于提供有针对性的支持和承认他们失去的社会和个人层面至关重要.
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