关于 Sarcoidosis 的信息,YouTube 是一个足够的信息来源吗?
Katharina Buschulte1, Sarah El-Hadi2, Philipp Höger2
1Center for Interstitial and Rare Lung Diseases, Pneumology and Respiratory Critical Care Medicine, University of Heidelberg, German Center for Lung Research (DZL), Thoraxklinik, Heidelberg, Germany. katharina.buschulte@med.uni-heidelberg.de.
Respiratory research
|September 9, 2024
概括
大多数关于沙尔科病的YouTube视频提供不完整的健康信息,缺乏有关疾病过程和肺外查的详细信息. 虽然质量部分足够,特别是来自学术来源,但对于患者获得可靠数据的改善是必要的.
科学领域:
- 医疗信息传播 医疗信息传播
- 数字健康传播数字健康传播
- 患者教育资源 患者教育资源
背景情况:
- 互联网是患者和护理人员健康信息的主要来源.
- 关于沙尔科病的YouTube视频的内容和质量仍然没有被检查.
- 这项研究解决了在YouTube上的 Sarcoidosis 信息理解方面的差距.
研究的目的:
- 评价有关沙尔科病的YouTube视频的内容和信息质量.
- 通过视频平台提供的 Sarcoidosis 信息中存在缺陷.
- 在YouTube上评估患者面临的 Sarcoidosis 内容的可靠性和完整性.
主要方法:
- 分析了85个英语YouTube视频中的 Sarcoidosis,针对患者.
- 使用25个特征分数和使用HONCode (0-8) 和DISCERN (1-5) 尺度的可靠性/质量评估视频内容.
- 视频中存在的任何错误信息的定性描述.
主要成果:
- 视频主要来自学术/政府来源 (74%).
- 内容分数一般很差 (平均10.5/25),经常忽略疾病过程和肺外表现.
- 在HONCode分数中,质量部分足够 (平均4.4/8),在学术/政府视频中更高,但往往缺乏引用.
结论:
- 关于 Sarcoidosis 的 YouTube 视频经常提供不完整的信息,特别是在关键的查方面.
- 虽然视频质量部分充足,特别是来自权威来源的视频质量,但往往缺乏证据和参考.
- 显然需要加强患者在线获取可靠,最新和全面的沙尔科毒症信息的机会.
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