全球乙型肝炎和D型肝炎社区咨询委员会:期望,挑战和经验教训
Fiona Borondy-Jenkins1, Bright Ansah1, Jacki Chen1
1Hepatitis B Foundation, Doylestown, PA, United States.
Frontiers in public health
|September 10, 2024
概括
建立针对乙型肝炎和三角肝炎的全球社区咨询委员会 (CAB) 是有价值的. 尽管存在诸如耻辱感等挑战,参与提供了宣传和知识收益,突出了定期进行CAB审查的必要性.
科学领域:
- 公共卫生 公共卫生
- 患者倡导 患者倡导
- 传染性疾病 传染性疾病
背景情况:
- 社区咨询委员会 (CAB) 对于以患者为中心的护理至关重要.
- 参与CAB对会员的全球影响仍未得到充分研究.
- 乙型肝炎基金会 (HBF) 在2022年成立了第一个全球乙型肝炎和型肝炎CAB.
研究的目的:
- 评估形成有效的全球CAB的过程.
- 评估CAB会员身份对参与者的影响.
- 确定CAB成员的动机,挑战和建议.
主要方法:
- 进行了3个虚拟焦点小组,包括16名CAB成员.
- 运用了基础理论和对转录会话的定性分析.
- 采用独立的初级和二级编码来进行主题识别.
主要成果:
- 关键的动机包括倡导和利他主义.
- 成为会员提供了网络,宣传机会和增强的知识.
- 挑战涉及时间,身体限制和耻辱;建议改善与药物开发商的接触.
结论:
- 对于污名化传染病的全球CAB是有益的和值得的.
- 对CAB的结构和绩效进行持续的内部审查对于完成任务至关重要.
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