由患有晚期癌症的儿童创作的数字故事
Morgan L Whitlow1, Mary Jo Gilmer1, Mary S Dietrich1
1School of Nursing, Vanderbilt University, Nashville, TN, USA.
Journal of pediatric hematology/oncology nursing
|September 11, 2024
概括
患有晚期癌症的儿童创建了数字遗产故事,强调家庭和个人特征. 这些故事揭示了孩子们如何看待他们的遗产,包括癌症作为他们的身份的一部分.
科学领域:
- 儿科瘤学 儿科瘤学
- 儿童心理学 儿童心理学
- 数字人文学科 数字人文学科
背景情况:
- 在儿科瘤学中,遗产建设至关重要.
- 数字讲故事有助于儿童记录他们的遗产.
- 了解儿童遗留的内容是未被充分探索的.
研究的目的:
- 探索患有晚期癌症的儿童创建的数字故事的内容.
- 了解患有癌症的儿童希望如何被记住.
主要方法:
- 招募了150名患有复发性/耐药性癌症的儿童 (7-17岁) 的亲子二团.
- 利用随机对照试验与通过讲故事的遗留干预.
- 使用一个网络程序创建故事 (文本,照片,电影,音乐) 和78个故事的定性编码.
主要成果:
- 在78个数字故事中分析了1516个故事条目.
- 确定了两个主要类别:故事输入媒介和故事内容.
- 内容包括人,环境,癌症,物体/活动和情绪/信仰,照片经常显示亲人和地点,文本详细说明偏好和梦想.
结论:
- 儿童的数字故事强调了家庭关系的重要性.
- 孩子们希望以个人特质和喜好来记住他们.
- 癌症是整合到孩子们对他们的遗产的看法.
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