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对患有肌缩性侧面硬化症的人进行自我同情干预的可接受性和潜在益处:混合方法试点研究

Marion Sommers-Spijkerman^1,2, Aimée Zwarts-Engelbert¹, Esther Kruitwagen-Van Reenen^1,2

¹Department of Rehabilitation, Physical Therapy Science & Sports, Brain Center, University Medical Center Utrecht, Utrecht, The Netherlands.

Amyotrophic lateral sclerosis & frontotemporal degeneration

|September 11, 2024

概括

一项试点研究发现,在线自我同情计划对患有肌缩侧面硬化症 (ALS) 的患者和护理人员是可以接受的. 虽然在统计学上并不显著,但趋势表明自我同情度有所提高,痛苦程度有所降低,这表明有助于弹性应对的潜在好处.

科学领域:

神经学神经学
心理学心理学心理学
数字健康数字健康

背景情况:

肌缩侧面硬化症 (ALS) 给患者和照顾者带来了巨大的情绪困扰.
弹性应对策略对于管理与ALS生活的挑战至关重要.
自我同情的干预措施在改善心理健康方面表现有前途.

研究的目的:

评估ALS患者在线自我同情干预的可接受性.
探索这种干预对抗弹性应对和情绪困扰的潜在好处.
为未来的受控试验收集初步数据.

主要方法:

一项单臂试点研究涉及20名患有ALS的患者或护理人员.
通过问卷和半结构面试来评估可接受性.
潜在的好处通过自我同情,自我批评和情绪痛苦的变化来衡量,使用经过验证的3周和6周的权衡表.

主要成果:

80%的参与者完成了这项研究,其中最满意的是.
定性数据显示了心理上的好处,比如增加自我善良和情感意识.
量化数据显示了积极的,虽然不是统计学上显著的,增加自我同情和减少痛苦的趋势.

结论:

对于患有ALS的人来说,自我引导的在线自我同情干预似乎是可以接受的.
需要对更大,多样化的样本和受控设计进行进一步的研究,以确认疗效和机制.
该干预措施有可能支持ALS社区的弹性应对.

关键词:

肌缩性侧面硬化症 (AMLS) 是一种疾病.干预干预干预干预干预干预人们的生活质量.自我同情是一种自我同情.

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